Redefining How We Think & Write About Disability
We are taught to think of deafness, blindness, paralysis, Autism, etc. as inherently disabling to people who have them, but they are not actually disabling unless occurring in a society that won’t include them. For example, if our built spaces had no stairs, narrow passageways, or steep slopes, and all meetings occurred sitting down, and all doors were automatic, and other such changes, then using a wheelchair would not actually prevent anyone from fully participating in society and would not be a disability. Or, to give a real-life example, there used to be such a large population of deaf people on the island of Martha’s Vineyard that all hearing people learned sign language. Deafness was not a disability when it did not hamper people from functioning in daily life. A wide range of difference in ability is natural to humanity and is not inherently disabling if society does not make it so.
It is important not to write about people as being deserving of pity because of their differences in ability, but instead to write about them as being deserving of compassion because of how our society excludes them, judges them as inadequate, infantilizes them, and does not give them full access throughout life.
Public health experts have learned to stop writing about being Black as a risk factor for certain health issues, but to write instead about being a target of anti-Black racism as a risk factor for those issues. When will the same be done for people disabled by our society’s refusal to support people with the full, wide range of differences that naturally occur in our species? At least we can begin this change in the ways we think and write about people with disabilities.
Salena Levi
Wonderfully fresh perspective, Erica, on a much needed subject: inclusion with compassion and the adjustments that are helpful.
And kudos to your amazing work in the world and your success.